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Wednesday, October 13, 2010

Today is day one...

I am back on here with a new name and new blog because I was unable to retrieve my password due to computer issues. I sure have missed this outlet from my life. It seems that if we talk about our problems we feel better but not in the way I want. I actually hate complaining..... It takes up too much energy and gives me a headache. After the headache it just puts me in a funk for a long time. No one likes to feel that way...at least I hope they don't.
Let's see where to begin. I have another blog on here that starts this journey.... mom2twoboys.com. I actually went through the worst part of my diagnosis on that site. I'll try to find the link and post it on here if anyone wants to read it.
Life is pretty good lately. I am feeling good, eating right and exercising. I read all the time and aspire to write children's books someday. Maybe even my own memoirs but who would read them. I just think there's so much to tell everyone and so much to learn from everyone as well.
On this journey I have met some pretty amazing people. Before I tell you about them I should backtrack a bit and tell you about me.
I'm a 35 year old mother of two and wife to an amazing man. I was diagnosed two years ago with a condition called Neurofibromatosis type 2 and Chiari Malformation. Wow!!! Yeah that's a mouthful....In plain speak.... I have brain and spinal tumors and a lot of them...In upwards of 20-30. Before you gasp and say "Oh my God!!!" , they aren't cancerous. They are benign and slow growing so the prognosis isn't really that bad. I keep telling myself that. LOL
I had surgery on 8/25/08 to have 5 tumors removed. My doctor was amazing and really helped me see the outlook of my life. Tumors, deafness, blindness, etc....
What a bunch of crap to look forward to. Scares the shit out of me to tell you the truth. So, what did I do? I started reading, anything and everything. I'm reading a book a day and can't get enough. I'm going to continue until the inevitable happens...if it does in fact happen. I'm holding off as long as possible on the surgeries for the tumors in my ears and close to my eyes.
I am still working and still running the household. I am waking up everyday with the quote " I Choose Life" written on my bathroom mirror. This is my life and this is how I choose to live it. I figure we all have a choice, right?

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